Discussion about this post

User's avatar
Kat Smith's avatar

As the partner of someone on the list... thank you for doing this episode. I have so many thoughts and so much I can share if anyone is interested <3

Karin True's avatar

This was a tough listen for me. I work in kidney transplant (my opinions here are my own and not that of my employer). I am very familiar with all of this reporting, as you might imagine. I write this fully acknowledging that of course I am biased. Does this system need reform? Yes. Are many of these problems a result of government regulation that has been thrust upon organ transplant? Also yes. Have the many good actors in the transplant community been calling attention to these issues and asking for change for a long time? Very much yes.

I have been thinking all day about what to write here. I could explain the challenge of finding the right kidney for the right patient, and why one organ may be good for one patient and not another, and that unless you have done this for many years, those choices may be called into question. That the flip side of passing on a kidney for someone can be taking a kidney that doesn't end up working well, or not at all, and how hard it is to know what will happen in the future when you have to make a decision in minutes with whatever data on the donor they happen to have. And our program is held accountable for not taking enough organs, but also accountable if the organs we take do not perform well, so we have to make sure we are walking that tightrope exactly right or we end up being flagged as a center. And also most of these decisions are made at night, on weekends, during holidays, birthdays, etc. My kids have heard me talk over organ offers so many times they could probably do it themselves.

I want listeners to know that this is a flawed system with deeply caring people that are doing their best within it. I have yet to meet a transplant surgeon, physician, nurse, procurement team, etc. that wishes harm upon a recipient, donor, or donor family. Sadly, they probably exist, but I think they are infinitely more rare than you might think after hearing this reporting.

I do think that the reduction out-of-sequence offers (the "skipped" patients he refers to) is a good thing, and was needed. I do worry about people removing organ donation from their drivers licenses, and I was devastated to learn that you had done so, Sarah. I am glad you made your wishes known to your family, but unfortunately most people won't. I worry that deceased organ donation is going to continue to fall (there is already a pretty strong signal that it is happening already). I understand where the lack of trust is coming from, but there is a lot of nuance here that gets missed in a news article.

Happy Birthday, Sarah!

23 more comments...

No posts

Ready for more?